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Neurocutaneous Disorders Program

The Neurocutaneous Disorders Program at Prisma Health provides specialized care for children and families affected by genetic conditions that impact the nervous system and skin, such as neurofibromatosis and tuberous sclerosis. Our program brings together a collaborative team of experts to deliver comprehensive, coordinated care in one convenient setting.

Our approach

Proud to be recognized as a member of the Children's Tumor FoundationWe believe in a patient-centered model that combines advanced medical expertise with compassionate care. During your visit, your child will be evaluated by multiple specialists in a single appointment, which may include:

  • Neurology: Assessment of neurological symptoms and development.
  • Neuro-oncology: Evaluation for tumor risks and discussion of individualized management plans.
  • Neuropsychology: Review of cognitive and behavioral development to support learning and emotional well-being.
  • Nephrology: Consulted for evaluation of kidney function in tuberous sclerosis patients.
  • Genetics: We offer referral to a genetic counselor (not on staff with the program).

Following the initial visit, patients typically return for follow-up every six to twelve months or as needed. We work closely with your child’s primary care provider and other specialists to ensure seamless, ongoing care.

Conditions we treat

Our multidisciplinary team manages a range of neurocutaneous disorders, including:

  • Neurofibromatosis (NF1 and NF2)
  • Schwannomatosis
  • Tuberous sclerosis complex

Our team

Resources for families

Hours and Contact Information

We see patients on the second Thursday of the month, 1– 3 p.m. Contact our nurse navigator at 864-455-5312.